Thursday, November 15, 2012

PART 2- What Living with PTSD is Like on a Day-to-Day Basis


It should have been a day of fun, a time to unwind and play with the kids before heading back to Iraq after coming home on emergency leave after his father passed away.  The last week had been pure stress and emotion, and I was hoping to squeeze in just a little bit of family time before he had to go.

We went to Jump ‘n’ Jive, a place in Amarillo full of bounce houses for the kids to play on.  We did what most parents do with two young kids: divide and conquer.  You take that one, and I’ll take this one.  It wasn’t long before he brought me our son and said he had to make an important phone call.  He walked outside, and I did my best to chase them both until he got back.  It seemed to take forever, and I kept walking by the window, pointing at the imaginary watch on my wrist and motioning for him to come back in.  About 30 minutes later, he did, but less than 15 minutes after that, he grabbed my arm and whispered through clenched teeth that he had to go wait in the car.

I tried to talk him out of it, but it was like he wasn’t hearing me.  He quickly exited, leaving me to chase two kids determined to go in two different directions.  I was furious.  He hadn’t seen the kids since the day after Christmas when he was recalled back to Fort Bragg.  I was the one who had to deal with the stress of being a single parent while he was away, and he couldn’t even focus on them for one afternoon!  I finally calmed down and told myself that after being plucked out of a war zone on short notice and dealing with the funeral details, he hadn’t really had any time to himself to think, to let it all sink in.  I later found out that wasn’t entirely the case.

What he wasn’t able to verbalize until later that night was that he just couldn’t handle the environment.  The constant whirring noise of the blowers was unbearable.  The children screaming, darting in and out of hidey-holes, hiding in the shadows, and popping up unexpectedly was more than he could handle.  He felt like he was on high alert, his heart raced, and he was starting to sweat.  While I understood that it was a normal reaction coming back home for such a short period with no time to decompress, I had no idea that it was a sign of what was to come when he came home for good.

LIVING WITH PTSD
Last week, I wrote about the symptoms of PTSD, why the body reacts the way it does, and tried to defuse some of the violent Hollywood stereotypes.  This week, I’m going to focus on what living with PTSD looks like for many families every day.  Hopefully this will explain why we sometimes do the things we do.

TRIGGERS
There are endless lists of what sort of things can “trigger” a veteran to become “amped up” or agitated.  What bothers one vet may not bother another, so it’s by no means a perfect list.  Sometimes a certain thing may not bother a veteran until they are already feeling stressed and possibly exhausted by sleepless nights.  Here are some of the most common triggers:

NOISE:  Loud, unexpected noises are probably the number one trigger that affects veterans with PTSD, especially those that can be interpreted as gunshots or incoming fire.   Fireworks, cars backfiring, slamming doors, dropping something heavy, the sound of machinery, loud crowds or screaming kids, even if they’re having fun, can cause a reflex reaction.

I’ll never forget driving back onto post at Fort Stewart right after the 3rd ID got home from Iraq in 2003.  The main headquarters shot off a cannon every weekday at 5:00 p.m.  We were directly in front of the building, chatting away about something, not noticing the time.  When the cannon fired, my husband almost put my Chevy Blazer in the ditch.  We weren’t the only ones.  Several other cars also slammed on the brakes or swerved to “take cover”.  We made it a point after that not to go near the front gates at that time of day again.

CROWDS:  A lot of veterans with PTSD say they feel uncomfortable in large crowds.  When going to restaurants, they report having to sit near an exit or with their backs against the wall with a clear vantage point of their environment.  Especially in the wars in Iraq and Afghanistan, warriors were constantly on guard and were trained not to trust any civilians.  Suicide bombers were using women and children.  They didn’t know if an old crippled man was motioning for help or trying to lure in soldiers to detonate a hidden bomb.  They were able to control crowds and do their jobs with their fellow soldiers there to watch their back.  Even back home, their training tells them to scan the crowd, look for anything suspicious, and identify threats.  Again, some days this may not bother them, but other days, they can become distracted or even obsessed with it.

BEING SURPRISED: In war, surprise is rarely a good thing.  Many PTSD veterans have an exaggerated startle response when they are taken by surprise, especially if they’ve already scanned the area and didn’t see someone before.  If someone comes up behind my husband and taps him on the shoulder, even a familiar face, a friend just wanting to say hello, you could very well see him “jump out of his skin”.  The added stressor to this is the embarrassment that follows. 

I’ve also learned through the years that when my husband is alone in a room that I’m about to enter, I need to cough, clear my throat, or tap on the wall to announce my presence in advance so he doesn’t turn around and startle when he sees me mere feet from him.  It also doesn’t help that he sustained mild hearing loss from repeated blasts.  We’ve also had to teach our children that you don’t sneak up on Daddy.  Most normal families don’t usually have to have that talk with their children.

ON THE ROAD:  There are two things my husband hates about driving: debris on the road and inconsiderate drivers.  While most people could probably agree with the last one, it is particularly disturbing when you have PTSD.

Road debris was another trigger that took me by surprise.  We were driving to Amarillo one day shortly after he returned home, and he nearly put his truck in the ditch to avoid hitting a styrofoam cup in the road.  He jerked to the side out of reflex, and for a split second, I thought we had blown a tire.  He apologized and explained that debris in the road in Iraq could mean an IED (improvised explosive device).  While I haven’t seen a reaction that intense again, I can still see him tense up any time there is debris in the road.  He’ll still do all he can to avoid it, but the knee-jerk reaction has tapered down dramatically.

As for inconsiderate drivers, you would think this would be plain old common sense for all.  Unfortunately, this is not always the case.  People who tailgate, purposely box him in, cut him off, or are just plain aggressive will kick in that instinct to take evasive action.  You never know that the other driver is dealing with.  This goes for civilians, too.  I think everyone has heard the stories about people with such horrible road rage, they brandish a weapon or follow the other car when they exit the highway.  This is not just a veteran problem.  Please, be courteous on the road.

SMELLS: The first sign of PTSD I ever saw in my husband was triggered by a smell.  We had moved from Fort Stewart to Fort Bragg at the end of October.  With the holidays and going home for Christmas, we didn’t get every single box unpacked right away.  My candles were one of the boxes that collected dust for a few months, and one day when I was in a hurry, I lit one without dusting it off first.  It had that distinct burnt hair smell.  My husband retreated to our bedroom so abruptly, it caught me completely off-guard.  I followed him to find out what was wrong, and after almost an hour of trying to get him to talk, all he could say was “I can still smell it.”  He then broke down and told me about a car bomb that killed four of his men at a checkpoint.  The New York Times would refer to that incident as “the first suicide attack on United States soldiers fighting in Iraq.”  He had never told me about it until that day.

Some veterans report not being able to tolerate the smell of fire or diesel.  Just like the scent of your granddad’s Old Spice or your grandmother’s chocolate chip cookies can take you back to warm, happy memories, scents can take warriors back into the scariest moments of their lives.

CERTAIN DATES:  Many veterans also report feeling more “amped up” or emotional on certain dates or times of the year, especially if it involved the loss of a friend and fellow soldier or the date of personal trauma or injury.  On the anniversary of the car bomb, you can pretty much bet that we’re not going anywhere.  Some wounded warrior organizations have coined the term “Alive Day” for the day a soldier survived a horrific injury.  Some say it is a day to be celebrated.  For most of the wives I talk to, it’s a day they dread each year because it usually means their husband is on edge for days, sometimes weeks leading up to that day.

Again, this is not the complete list of triggers, just to ones we personally deal with the most often in our everyday lives.

AFTER THE TRIGGER
Once the limbic system of the brain (the fight-or-flight reflex) is triggered, the body will react by preparing the body to act, and act fast.  Adrenaline starts pumping, heart rate increases, and the mind becomes sharp and begins to work overtime processing every little thing in the warrior’s environment.  This is what we refer to as being “amped up.”  As explained in the previous article, the one emotion that seems to bubble up the fastest is anger.  Anger keeps the soldier alive on the battlefield, but is not particularly helpful back home.

My husband, Will Montgomery, explained “When you get “activated” or “amped up”, you automatically get angry, even if there is nothing to be angry about.  Then you start looking for things to be angry at, because it makes no sense to be amped up and angry for no reason.”

This is where warriors and their spouses can face the most problems.  Until they both realize that the anger is a result of a trigger, feelings can get hurt and marriages can start to unravel.  Part of many treatment programs focus on recognizing the true reason for the anger and finding new ways to deal with the triggers and the reaction to them.

LEARNING TO ADAPT
Wounded warrior wife Tammy M. of Texas said, “The biggest change our family had to make because of PTSD was the ability to change at any given minute.”

Most veteran families dealing with PTSD can agree.  It’s hard to commit to future plans because they never know what kind of “day” their veteran will be having.  Sometimes they will have every intention to do something, only to be triggered and need to make an early escape, or cancel altogether.  We learn to plan for every possible scenario, and always, always, always have a backup plan.  Sometimes, that means the veteran may need to stay at home while the family goes without them.  It’s hard on everyone, especially when they feel like they are being judged for not being there.

Jim G. of North Carolina was a Navy Corpsman who was injured during his third deployment to Iraq.  He says the hardest part of living with PTSD is feeling alone and secluding himself.

“I avoid fun, people, and crowds because I don’t want to get anxious or angry,” said Jim.  “This means that I don’t get to spend time with my wife and daughter like I used to, which I miss a lot.”

Jim’s wife, Alishia, agrees.  She very often will deal with her daughter’s activities alone, and admits that mostly they stay home to have some form of family time together.

“It has become easier to not do anything than to have to deal with the consequences of him being so on edge,” she explains.

A common practice among families dealing with PTSD is to try to avoid known triggers if at all possible.  The Fourth of July is a big topic of discussion in many PTSD groups.  Some choose to stay home and try to drown out the noise with music or movies.  Others choose to leave town and go to a place where there are no fireworks, or a place where they can be in control of them so they aren’t taken by surprise.

This year, my husband really struggled with fireworks.  He was coping pretty well until one day when he went to take the trash to the dumpster, and as soon as he opened the back door, a big and extremely loud mortar round exploded above our backyard.  We spent nearly the next week out of town at a family farm in Wheeler County, away from the noise.  We didn’t want to be the “cranky neighbors” who called in to complain about fireworks, something we would have otherwise enjoyed had it not been for PTSD. 

He tried his best to ignore it the rest of the time, and he would take our daughter to her week-long TEXAS performance in the canyons.  At least their fireworks were choreographed with music so he knew when and where to expect them.  We thought we had made it past the stress until someone started shooting off big fireworks after 1:00 a.m. on July 6th.  He was livid and was amped up for the next few days, especially because he really hadn’t had a decent night’s sleep in over a week.

Over time, most spouses become acutely aware of their veteran’s triggers and can easily spot their “tells” when they begin to get stressed out.  It can be the way they look, a change in pitch or volume when they talk, or the need to be alone and have some space.  We watch for these signs, sometimes even spotting them before our spouses realize they are beginning to project them.

Wounded warrior wife Heidi W. of Nevada says the best way she can help her husband sometimes is to give him space.

“I created a space for my husband that he could escape to when he needs to step away,” she said.  They also established a code word so he could let her know he needs some alone time.

Sometimes the hardest part as wives is having to learn to not ask questions and let it go, at least for the time being.  Before I really understood how his PTSD affected him, I would follow my husband from room to room, begging him to talk about what was bothering him, which only added fuel to the fire.  It’s a give and take.  Wives have to learn to let them be, and husbands have to learn that we are concerned and still want to talk about it at a more appropriate time.

No matter how far along in treatment the veteran is, there is almost always worry about triggers.  As Cheryl G., wounded warrior wife and advocate, says, “PTSD is manageable, [but] it is always there.”

“He is constantly battling it everywhere he goes,” she says.  “It is manageable, but it isn’t always easy.”

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I’m amazed at the number of people who have already contacted me following the publication of the first article.  People have shared stories, requested more information, and even told me that because they shared the link, a friend or family member opened up to them about the problems they were having with PTSD.  This is the reason I’m doing this series.  Thank you all so much for helping spread the message to those who needed to hear it.

Always remember: 
YOU ARE NOT ALONE.


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